Support & resources
Support groups, charities, and other resources for people with Long Covid
Long Covid Support
Long Covid Support, has offered a lifeline for many, with its warm, well-moderated and inclusive community, and regular support calls on Zoom.
Long Covid Support: Scotland
Another affirming, inclusive and friendly Facebook group, but covering the unique experiences of people living with Long Covid in Scotland.
Body Politic
Body Politic are famed for their inclusive and friendly Slack group, and for being an essential platform for patient-led research.
#MEAction Long Covid group
Some with Long Covid have symptoms of ME/CFS, including post-exertional malaise. This group can support you to manage these symptoms.
Long Covid Physio
Run by physiotherapists with Long Covid, Long Covid Physio provide multiple high-quality resources on rehabilitation and pacing.
The Thistle Foundation
Based in Edinburgh, the Thistle Foundation can help people with Long Covid and other chronic illness to manage their conditions holistically.
Breathing Space
Breathing Space is a Scottish charity supporting people who are low, anxious or depressed. Call their helpline on 0800 83 85 87.
Mind
Mind provide information and support, including peer support and helplines, for people struggling with their mental health.
Fightback4Justice
Fightback4Justice is a non-profit organisation providing specialised, expert advice and help on various welfare benefit claims.
PoTS UK
People with Long Covid often describe symptoms of ‘Postural Tachycardia Syndrome’. PoTS UK have multiple resources for understanding this condition.
POTS Support Group UK
Unrelated to the charity, a popular and carefully-moderated support group to find answers on Postural Tachycardia Syndrome.
Mast Cell Action
Mast Cell Activation Syndrome, or MCAS, has recently been linked to Long Covid. This charity can support you to navigate diagnosis and treatment.
Chest Heart & Stroke Scotland
CHSS have been key in the Scottish campaign for Long Covid support and services. Call their advice line nurses on 0808 801 0899.
Scottish Opera Workshops
The Scottish Opera Breath Cycle workshops including singing and songwriting classes for people with Long Covid.
Balance Menopause
Balance Menopause provide trans and non-binary inclusive information and support on perimenopause and menopause.
Asthma + Lung UK
Asthma + Lung UK were one of the first charities to offer information and breathing advice for people with symptoms of Long Covid
Physios for ME
Run by physiotherapists with a specialist interest in ME, Physios for ME offer resources on pacing, heart-rate monitoring, and advocacy.